22 May 2025
About
The Australian Digital Health Agency (the Agency) has asked Consumers Health Forum of Australia (CHF) to explore how young people (aged 14-25 years) are using and managing their My Health Record. To do this, CHF will be running a series of online focus group discussions with young people, and with parents of young people.
When someone turns 14, they automatically get full control of their record. This means that they can then decide who can see or update their health information — including whether their parents or guardians can still access it.
We want to find out if young people know about this, how they’d like to be supported to manage their own record, and what kind of role (if any) they think parents or guardians should have.
What you share in these focus groups will be passed on to the Agency to help improve the info and support available about My Health Record — for young people and their families across Australia.
The opportunity and your role
We’re looking for two groups of 6 young people aged 18–25 to take part in an online focus group (12 young people in total).
We want to hear your thoughts, experiences, and suggestions on using My Health Record. We also want to hear about what role you think your parents or guardians should have in managing your record, and what kind of information or resources you would like to have about it.
The focus group will run for 1.5 hours and you will need to spend about half an hour preparing before the meeting. There are two options of times to attend:
Tuesday 15 July, 6.00pm – 7:30pm AEST
Friday 18 July, 1:30pm - 3:00pm AEST
You’ll be paid $92.80 (ex GST) per hour for your time, including half an hour preparation time, and will receive a summary of the discussion afterwards.
To apply and for further information
Please fill out the expression of interest form, including your answers to the following questions:
Are you available on either Tuesday 15 July at 6pm AEST or Friday 18 July at 1:30pm AEST to attend the focus group? Which date would you prefer?
Have you ever used My Health Record?
Why are you interested in participating in these focus groups?
If you have any queries, please contact CHF Policy Officer, Naomi Thomson at n.thomson@chf.org.au
Expressions of Interest close on Monday 23 June 2025 at 5pm (AEST).
