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A
ACCESS Australia's National Infertility Network Ltd - www.access.org.au
ACCESS Australia's National Infertility Network is a consumer based, independent, not for profit support organisation, committed to being a national voice for women, men and their families suffering from infertility.
AIDS Council of NSW (acon) - www.acon.org.au
The AIDS Council of NSW is a health promotion organisation based in the gay, lesbian, bisexual and transgender communities with a central focus on HIV/AIDS. Branches exist in Sydney, Western Sydney, Illawarra, Northern Rivers, Hunter and Mid North Coast.
Alzheimers Australia Incorporated - www.alzheimers.org.au
Alzheimer's Australia is the national peak body for people living with dementia, their families and carers and provides leadership in policy and services.
Arthritis Australia - www.arthritisaustralia.com.au/
Arthritis Australia aims to improve people’s quality of life by reducing and preventing the effects of musculoskeletal disorders
Arthritis New South Wales - www.arthritisnsw.org.au
Arthritis New South Wales provides support, advice and information for people with arthritis. Liaise with and communicate with consumers who have arthritis through the NSW branch network. Promote community awareness of arthritis. Communicate with health professionals about the management of arthritis and support research into causes and management of arthritis.
Arthritis Victoria - www.arthritisvic.org.au/
Arthritis Victoria has developed highly regarded models of best practice which address the needs of people living with arthritis, osteoporosis, back pain and other musculoskeletal conditions.
Arthritis Western Australia - www.arthritiswa.org.au
The objective of Arthritis Western Australia is to reduce the incidence and disabling effects of arthritis, osteoporosis and related conditions through programs in care, education and research.
Association for the Wellbeing of Children in Healthcare - www.awch.org.au
The Association for the Wellbeing of Children in Healthcare (AWCH) is a national organisation advocating for the needs of children and families within the Health Care System in Australia. Focusing upon the psycho-social non-medical needs of children, AWCH is involved in education, advocacy, information provision, support to families and health professionals, research and consultation.
Asthma Foundations Australia - www.asthmaaustralia.org.au
Asthma Foundations Australia’s mission is to be the leading consumer authority on asthma education, information, research, community advocacy and support. Its ultimate aim is to eliminate asthma as a major cause of ill health and disruption within the community.
Australian Council of Social Service - www.acoss.org.au/
The Australian Council of Social Service (ACOSS) is the national peak council of the community welfare sector in Australia — the principal voice of low income and disadvantaged people in social and economic policy matters.
Australian Crohns and Colitis Association - www.acca.net.au
The Australian Crohns and Colitis Association is a resource centre for the general public and anyone with an interest in crohns and colitis. It provides; education, support, advice, advocacy and lobbying for those diagnosed and their families.
Australian Federation of AIDS Organisations - www.afao.org.au
The Australian Federation of AIDS Organisations is the national peak body of the community-based organisations responding to the HIV/AIDS epidemic. It works chiefly in national policy and advocacy and also designs and delivers prevention and health promotion programs, chiefly for gay men, Indigenous Australians and all Australians with HIV/AIDS.
Australian Pensioners' and Superannuants Federation (APSF)
Australian Primary Care Community Partnership Incorporated
Australian Primary Care Community Partnership Incorporated promotes community and consumer participation in a partnership approach to primary health care.
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Breast Cancer Action Group (NSW) - www.bcagnsw.org.au
The Breast Cancer Action Group (NSW) provides voice for people affected by breast cancer in NSW.
Breast Cancer Action Group Inc - www.bcag.org.au
The Breast Cancer Action Group was formed in 1994 by women committed to reducing the impact of breast cancer in the Australian community, through advocacy, in terms of both lives affected and lives lost.
Breast Cancer Network Australia - www.bcna.org.au
Breast Cancer Network Australia is the informed national voice of Australians affected by breast cancer. It seeks to empower them and improve their care through advocacy, the provision of information and targeted support, for the benefit of the whole community.
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Cancer Voices Australia - www.cancervoicesaustralia.org.au
Cancer Voices Australia are a national network providing a forum for people in Australia affected by cancer.
Cancer Voices NSW - www.cancervoices.org.au
Cancer Voices NSW is a coalition of cancer advocacy and support groups which provides a state level voice for people affected by cancer.
Cancer Voices Queensland - www.cancervoicesqld.org.au
Cancer Voices SA - www.cancervoicessa.org.au
Carers Australia - www.carersaustralia.com.au
Carers Australia represents the needs and interests of carers at the national level through advocacy, influencing government and stakeholder policies and programs, networking and forming strategic partnerships and the provision of information and education resources.
Child Health Association Inc
Chronic Illness Alliance Inc - www.chronicillness.org.au
The Chronic Illness Alliance is an alliance of chronic illness organisations. The aim of the Alliance is to build a better focus in health policies and health services for all people with chronic illness through education and research.
CJD Support Group Network Pty Ltd - www.cjdsupport.org.au/
The CJD Support Group Network offers support to all Australians affected by Creutztfeldt-Jakob Disease or other prion diseases. It is a rare and fatal degenerative disease in humans.
Cochrane Consumer Network (CCNET) - www.cochrane.org/consumers
Coeliac Society of NSW Inc - www.nsw.coeliacsociety.com.au/
The Coeliac Society of NSW provides information and support to those with coeliac disease, dermatitis herpetiformis and those diagnosed as requiring a gluten free diet.
Consumer Reference Group of General Practice Network NT - www.gpnnt.org.au
The Consumer Reference Group of General Practice Network NT was established in 1998 to assist in providing consumer input in the Division’s programs and services. The Group has worked with the Division since that time providing input into areas such as Mental Health, Tropical Health, Immunization and Birth Forums as well as strategic planning. The CRG has two voting positions on the Board of Management.
Continence Foundation of Australia Ltd - www.continence.org.au
The Continence Foundation of Australia is the peak body for continence. Its mission, "to promote continence and manage incontinence" is largely met through the National Continence Helpline (1800 33 00 66), a free and confidential Commonwealth Government service which the Foundation manages.
COTA Over 50s Ltd - www.cotaover50s.org.au/
Council of Social Service of New South Wales (NCOSS) - www.ncoss.org.au/
The Council of Social Service of New South Wales represents the non-government organisation and community services sector on NSW Health committees; advocate for equity of access to health services for the socio-economically disadvantaged; respond to Government reports and papers, develop submissions etc.
Council on the Ageing (COTA) SA - www.cotasa.org.au/
This group represents older people in South Australia.
Cystic Fibrosis Australia Inc - www.cysticfibrosis.org.au
Cystic Fibrosis Australia aims to facilitate and promote the provision of optimal care to all people affected by Cystic Fibrosis and ensure they have the best possible quality of life.
Cystic Fibrosis Western Australia - www.cysticfibrosis.org.au/wa
CF Western Australia's mission is to contribute to the social, physical and emotional wellbeing of those affected by Cystic Fibrosis and to assist in the promotion of research.
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DES Action Australia - NSW
DES Action Australia - NSW is a support group for those affected by DES (diethylstilboestrol). DES was a drug given in pregnancy to prevent miscarriage (1938-1980s). It caused cancer and reproductive health risks to those women and their exposed offspring.
Diabetes Australia - www.diabetesaustralia.com.au
Diabetes Australia is the peak body in Australia representing, and providing a range of services to, people affected by diabetes. The combined primary activities of the federated organisation are the provision of diabetes health services and self-management products, public awareness promotion, diabetes research, and advocacy and lobbying functions.
Diabetes Australia - NSW - www.diabetesnsw.com.au/
Diabetes Australia-NSW is a charity working towards the management, detection and prevention of diabetes and finding cure for this disease
Diabetes South Australia - www.diabetessa.com.au
Diabetes South Australia is a charity working towards the management, detection and prevention of diabetes and finding cure for this disease
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Federation of Ethnic Communities' Councils of Australia Inc - www.fecca.org.au/
The Federation of Ethnic Communities' Councils of Australia Inc (FECCA) is the peak, national body representing Australians from culturally and linguistically diverse backgrounds. FECCA's role is to advocate, lobby and promote issues on behalf of its constituency to government, business and the broader community. Established in 1979, FECCA is a non-political community-based organisation. Apart from its national office professional staff, it is supported by the work a voluntary Executive Council.
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Genetic Support Council of WA (Inc) - www.geneticsupportcouncil.org.au
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Haemophilia Foundation Australia - www.haemophilia.org.au/
Haemophilia Foundation Australia (HFA) is committed to the improvement of treatment of haemophilia and related bleeding disorders, and the complications arising from such treatment. The Foundation works for, and represents all people with haemophilia and their families, improving care, support and quality of life through advocacy, education and the promotion of research.
Health Care Consumers' Association of the ACT - www.hcca.org.au/cms/index.php
The Health Care Consumers' Association of the ACT (HCCA) was formed in 1978 by concerned ACT health care consumers to provide a voice for consumers on local health issues.
HCCA aims to be a means for health care consumers to participate in policy, planning and service decisions that affect their health. It does this by working with health providers to achieve services that are responsive, respectful, accessible and affordable to all; encouraging direct consumer involvement in health decision making; and lobbying and advocating on behalf of ACT health care consumers.
Health Consumers Alliance of South Australia Inc
Health Consumers Alliance of South Australia aims to provide a strong, independent, effective voice for health consumers in SA.
Health Consumers of Rural and Remote Australia Inc - www.ruralhealth.org.au
Health Consumers of Rural and Remote Australia is a not for profit organisation that works to improve rural health outcomes by involving consumers in the planning, implementation, management and evaluation of health services throughout non-metropolitan Australia.
Health Consumers Voice NT
Health Consumers Voice NT is focused on strengthening the voice of consumers through education and training to build consumer capacity for increased participation and to respond to consumer needs.
Health Consumers' Council WA (Inc) - www.hconc.org.au
The Health Consumers' Council WA will ensure that individual health consumers and groups of health consumers contribute to the development of health policy, planning, research and service delivery through the provision of education, advocacy, training, information services and community participation.
Health Issues Centre - www.healthissuescentre.org.au
Health issues Centre is a non-government, health policy/research centre which recommends improvements to the health system from the perspective of consumers. It aims to create a more equitable health care system which is more responsive to users, particularly those who are disadvantaged by current arrangements.
Health Rights & Community Action - users.chariot.net.au/%7Ehealthrights/
Health Rights and Community Action is a South Australian Consumer Group. Most of the consumers have experienced an adverse incident in a health service. The group aims to see that a Universal Health Complaints Mechanism is established; that consumers are respected and included in their health complaint process; and to inform consumers who have experienced a problem with the health system, to have their problem addressed.
Heart Support - Australia - www.heartnet.org.au
Heart Support Australia provides support, encouragement, information and self management programs to the three million Australians who are affected by a heart conditions, their carers and families.
Hepatitis Australia - www.hepatitisaustralia.com
Hepatitis Australia provide a national leadership and advocacy on viral hepatitis. They support partnerships for action to ensure the needs of Australians affected by or at risk of viral hepatitis are met.
Hepatitis C Council of South Australia Inc - www.hepccouncilsa.asn.au
Information and support for South Australians affected by hepatitis C.
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Illawarra Stroke Unit Project
The Illawarra Stroke Unit Project raises funds and then purchases much needed equipment for the rehabilitation of patients in the Wollongong Stroke Ward.
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Lymphoedema Support Group of NSW - www.lymphoedemasupport.com
The Lymphoedema Support Group of NSW aims to provide support for people living with lymphoedema and to provide information and education on the condition.
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Maternity Coalition Inc - www.maternitycoalition.org.au
The Maternity Coalition is Australia’s National Maternity Consumer Organisation. We believe that birth matters in Australia today.
ME/CFS Society (SA) Inc - sacfs.asn.au/
The ME/CFS Society (SA) aims to improve the quality of life and health management of people with ME/Chronic Fatigue Syndrome, whilst supporting community education and research initiatives, which will lead to recognition by government health providers of the need for better outcomes in service provision.
ME/CFS/FM Association - Queensland Inc - www.users.bigpond.com/mefmtba
The ME/CFS/FM Association - Queensland provides information, support and counselling to patients with chronic fatigue syndrome/fibromyalgia and their carers, and raises funds for medical research into the illnesses.
ME/Chronic Fatigue Syndrome Association of Australia - www.mecfs.org.au/
The ME/Chronic Fatigue Syndrome Association of Australia collects and distributes information about the conditions, supports people living with ME/CFS and related conditions, and liaises with health professionals to improve services. It also lobbies for more research into ME/CFS and provides public education on the conditions.
Mental Health Co-ordinating Council - www.mhcc.org.au
The Mental Health Co-ordinating Council is the peak body for non-government organisations working for mental health throughout NSW. Membership includes NGOs, both specialist and mainstream, and other bodies interested in mental health.
Mental Illness Fellowship of Australia Inc - www.mifa.org.au
The Mental Illness Fellowship of Australia Inc (MIFA) is a national organisation with member organisations in all states and territories on the mainland. MIFA was formed in 1986 and in 2001 changed its name from Schizophrenia Fellowships' Council of Australia. Membership is close to 15,000 Australia-wide, the majority of whom are consumers and carers affected by mental illness and psychiatric disability.
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National Association of People Living with HIV/AIDS, Australia (NAPWA) - www.napwa.org.au
The National Association of People Living with HIV/AIDS, Australia (NAPWA) is the peak national non - government organisation representing people living with HIV/AIDS community based groups in Australia. NAPWA is the only national association advocating and representing specifically on behalf of people living with HIV/AIDS, and it ensures that people living with HIV/AIDS are central to the Australian response to the HIV/AIDS epidemic.
National Seniors Australia - www.nationalseniors.com.au
National Seniors Australia is a not-for-profit membership based community organisation. It is Australia's largest organisation representing those aged 50 years and over.
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Obsessive Compulsive Disorders Support Service
The Obsessive Compulsive Disorders Support Service (OCD) acts as a support, information and referral service to those affected by OCD and their carers, predominantly in South Australia.
Older Women's Network (Australia)
The major interest of the Older Women's Network (Australia) is in promoting healthy ageing in all aspects.
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Palliative Care Australia - www.pallcare.org.au
Palliative Care Australia's goal is to work toward the relief of pain and suffering of dying people in Australia and the provision of the care they need.
Positive Life NSW - www.positivelife.org.au/
Positive Life NSW is a non profit community organisation representing the interests of people living with HIV/AIDS in New South Wales. Incorporated on 21st July 1989 it is partially funded by the government and is dependent on donations. An executive officer manages the organization in conjunction with an elected board of eight and one staff representative. Full Membership is open to a person with HIV living in NSW and associate membership is open to NSW residents affected by HIV/AIDS.
Post-Polio Network (NSW) Inc - www.post-polionetwork.org.au
The Post-Polio Network (NSW) is a self-help self-funded volunteer organisation run by polio survivors. It provides information and support about the late effects of polio to polio survivors, their families and the health professionals who care for them.
Public Interest Advocacy Centre - www.piac.asn.au/
The Public Interest Advocacy Centre is an independent, non-profit legal and policy centre. Using its legal and policy skills, PIAC makes strategic interventions in public interest matters to foster a fair, just and democratic society and to empower citizens, consumers and communities.
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SHOUT (Self-Help Organisations United Together) - www.shout.org.au
SHOUT (Self-Help Organisations United Together) is an umbrella organisation for ACT self-help and support groups.
Sleep Apnoea Association (ACT) Inc
Stillbirth and Neo-natal Death Support (Qld) Inc
Stillbirth and Neo-natal Death Support (Qld) Inc provides mutual support, information, education and advocacy for parents and their families who experience the loss of a baby to miscarriage, stillbirth, neonatal death and other reproductive losses.
Stroke Association of ACT
Stroke Association of ACT represents interests of Stroke sufferers in the ACT. Membership open to patients, carers and friends.
Support & Advocacy Committee of Prostate Cancer Foundation of Australia - www.prostate.org.au
The information on the website of the Support & Advocacy Committee of Prostate Cancer Foundation of Australia is presented from the perspective of patients who have experienced diagnosis and treatment for prostate cancer. It was written by members of prostate cancer support groups affiliated with the Foundation.
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Tasmanian Council of Social Service - www.tascoss.org.au
Tasmanians with Disabilities Inc
Tasmanians with Disabilities Inc is the peak organisation promoting disability rights in Tasmania. It is a consumer focused organisation founded by people with disabilities and managed by people with disabilities.
The Link Youth Health Service - http%3A//www.dhhs.tas.gov.au/services/view.php%3Fid%3D2063
The Link Youth Health Service is a free, safe and confidential service set up to help meet the health needs of young people between the ages of 12 and 24 in Tasmania. The Link works with all young people but its primary focus is homeless young people or those at risk of homelessness.
The Queensland Alliance of Mental Illness & Psychiatric Disability Groups Inc - www.qldalliance.org.au
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WA Association for Mental Health - www.waamh.org.au
The WA Association for Mental Health is the peak representative body in WA for non-Government, not-for-profit organisations that operate for people affected by mental illness.
Wollongong Health Consumers
Wollongong Health Watch (previously Wollongong Health Consumers Advisory Group), is one of five health consumer groups in the Illawarra. The Group’s first goal is to listen to the Wollongong community as represented by its members. Its membership is drawn from the community in the geographical area of Fairy Meadow, south to Windang and west to Dapto.
Women Incest Survivors Network
Women's Centre for Health Matters Inc - www.wchm.org.au
Women’s Centre for Health Matters works to improve the health and wellbeing of all women in the ACT and region.
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